Paper Review Records
All Paper Review Records
10 valid samples · Newest publication first
Review days = acceptance date − received date. PDF, DOI, and publisher-page sources are retained.
Research agenda and related workforce requirements inspired by Lived Experience Experts and grounded in health equity for the Bleeding Disorders Research Collaborative
AuthorsJill M. Johnsen; Tyler W. Buckner; Glaivy Batsuli; Samantha A. Carlson; Erin Burke Cirelli; Donna DiMichele; Veronica H. Flood; Andrew D. Johnson; Meadow Heiman; Justine Kaplan; Barbara A. Konkle; Bernard Khor; Emily W. Lankau; Gallia G. Levy; Keri L. Norris; Glenn F. Pierce; Nicholas A. Popp; Michael Recht; Jonathan C. Roberts; Fiona Robinson; Maria E. Santaella; Jordan A. Shavit; Raymond W. Stanhope; Sammie Valadez; Michelle L. Witkop; Lynn Malec; Amy D. Shapiro
Affiliations1. University of Washington; 2. Washington Center for Bleeding Disorders; 3. University of Colorado School of Medicine; 4. Emory University; 5. Aflac Cancer and Blood Disorders Center of Children’s Healthcare of Atlanta; 6. National Bleeding Disorders Foundation; 7. New York City Hemophilia Chapter; 8. Donna DiMichele Consulting, LLC; 9. Weill Cornell Medical College; 10. Medical College of Wisconsin; 11. Versiti Blood Research Institute; 12. National Heart Lung and Blood Institute; 13. Innovative Hematology & Indiana Hemophilia and Thrombosis Center; 14. American Thrombosis and Hemostasis Network; 15. Benaroya Research Institute; 16. Bloodworks Northwest; 17. Emily W. Lankau Consulting, LLC; 18. Spark Therapeutics, Inc; 19. World Federation of Hemophilia; 20. Yale School of Medicine; 21. Dills Family Foundation Center for Research at BCDI; 22. University of Illinois College of Medicine at Peoria; 23. Communications Fiona Robinson; 24. University of Michigan; 25. Lone Star Bleeding Disorders Foundation; 26. Bleeding Disorders Alliance of Illinois; 27. Consultant for Inherited Bleeding Disorders; 28. Versiti Comprehensive Center for Bleeding Disorders
Bleeding Disorders Research Collaborative: an opportunity for impact
AuthorsMaria E. Santaella; Sammie Valadez; Esmeralda Vázquez; Halli Benasutti; Samantha A. Carlson; Donna DiMichele; Keri L. Norris; Fiona Robinson; Leonard A. Valentino; Michelle L. Witkop; Michael Recht
Affiliations1. National Bleeding Disorders Foundation; 2. Bleeding Disorders Alliance of Illinois; 3. Lived Experience Expert; 4. Donna DiMichele Consulting, LLC; 5. Weill Cornell Medical College; 6. Communications Fiona Robinson, PhD; 7. Consultant for Inherited Bleeding Disorders; 8. Yale School of Medicine
Centering Lived Experience Experts and health equity in the Bleeding Disorders Research Collaborative
AuthorsSammie Valadez; Maria E. Santaella; Samantha A. Carlson; Erin Burke Cirelli; Fiona Robinson; Raymond W. Stanhope; Esmeralda Vázquez; Keri L. Norris
Affiliations1. Bleeding Disorders Alliance of Illinois; 2. National Bleeding Disorders Foundation; 3. New York City Hemophilia Chapter; 4. Communications Fiona Robinson, PhD; 5. Lone Star Bleeding Disorders Foundation; 6. Lived Experience Expert
Infrastructure and workforce development processes inspired by Lived Experience Experts and grounded in health equity for the Bleeding Disorders Research Collaborative
AuthorsLynn Malec; Moses E. Miles; Lauren E. Amos; Samantha A. Carlson; Donna DiMichele; Iftikhar Haider; Andra H. James; Keri L. Norris; Kristin Paulyson-Nuñez; Michael Recht; Fiona Robinson; Maria E. Santaella; Raymond W. Stanhope; Sammie Valadez; Michelle L. Witkop; Ziva Mann; Amy D. Shapiro; Margaret V. Ragni
Affiliations1. Versiti Comprehensive Center for Bleeding Disorders; 2. Versiti Blood Research Institute; 3. Medical College of Wisconsin; 4. American Thrombosis and Hemostasis Network; 5. Children’s Mercy Hospital; 6. National Bleeding Disorders Foundation; 7. LLC; 8. Weill Cornell Medical College; 9. Illinois State University; 10. University of Illinois at Urbana-Champaign; 11. Duke University; 12. Duke University Health Systems; 13. Yale School of Medicine; 14. Communications Fiona Robinson, PhD; 15. Lone Star Bleeding Disorders Foundation; 16. Bleeding Disorders Alliance of Illinois; 17. Consultant for Inherited Bleeding Disorders; 18. Lived Experience Expert; 19. Ascent Leadership Networks; 20. Innovative Hematology Inc. and Indiana Hemophilia and Thrombosis Center; 21. University of Pittsburgh Medical Center
Lived Experience Expert, community engagement, policy, and health equity, diversity, and inclusion elements of the Bleeding Disorders Research Collaborative
AuthorsKyle A. Davis; Nathan Mermilliod; Jeremy Griffin; Samantha A. Carlson; Erin Burke Cirelli; Michelle Conde; Donna DiMichele; Alexis Dinno; Michael Glenzer; Roshni Kulkarni; Regina Legere; Marissa Melton; Keri L. Norris; Richard Pezzillo; Michael Recht; Fiona Robinson; Maria E. Santaella; Nathan Schaefer; Raymond W. Stanhope; Sammie Valadez; Leonard A. Valentino; Esmeralda Vázquez; Mosi Williams; Michelle Witkop; Shannon L. Carpenter
Affiliations1. Lived Experience Expert; 2. Innovative Hematology, Inc; 3. Lived Experience Expert, National Bleeding Disorders Foundation National Youth Leadership Institute; 4. New York City Hemophilia Chapter; 5. National Bleeding Disorders Foundation; 6. Lived Experience Expert, New York City Hemophilia Chapter; 7. Hemophilia of Georgia; 8. Donna DiMichele Consulting, LLC; 9. Weill Cornell Medical College; 10. Oregon Health & Science University-Portland State University School of Public Health; 11. Michigan State University; 12. Lived Experience Expert, New England Hemophilia Association; 13. Yale School of Medicine; 14. Pathway to Cures; 15. Communications Fiona Robinson, PhD; 16. Lived Experience Expert, Lone Star Bleeding Disorders Foundation; 17. Lived Experience Expert, Bleeding Disorders Alliance of Illinois; 18. Rush University; 19. Genentech; 20. Sporty Strategies; 21. Consultant for Inherited Bleeding Disorders; 22. Children’s Mercy Hospital; 23. University of Missouri-Kansas City
Clinical laboratory diagnostics and monitoring of ADAMTS13 deficiency and of related diseases: an integrated approach
AuthorsNikolaus B. Binder; François Depasse; Michael Spannagl; Jürgen Patzke; Stephan Schwers; Peter L. Turecek
Affiliations1. Technoclone Herstellung von Diagnostika und Arzneimitteln GmbH; 2. Diagnostica Stago; 3. LMU University Hospital; 4. INSTAND eV, Düsseldorf, Germany; 5. Bayer AG; 6. University of Vienna
Supportive care, prevention, and emerging therapies for acute chest syndrome in sickle cell disease
AuthorsRachel R. Rice; Shaina M. Willen
Affiliations1. University of California Davis Medical Center; 2. University of Nevada
Myelofibrosis treatment sequencing: mutation-informed risk and optimal JAK inhibitor discontinuation
AuthorsGiulia Benevolo; Giuseppe Lanzarone; Benedetta Rosti; Eloise Beggiato
Affiliations1. Città della Salute e della Scienza
Advances in treatments for hemophilia A/B with inhibitors: current treatment gaps and promising therapies
AuthorsJohnny Mahlangu
Affiliations1. University of the Witwatersrand
Sutimlimab for cold agglutinin disease: an updated perspective from approval to real-world clinical treatment
AuthorsCatherine M. Broome; Bruno Fattizzo
Affiliations1. MedStar Georgetown University; 2. Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico; 3. University of Milan
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